Spoonie Instructions – Stream of Consciousness Saturday

serenity shot of the week

Your Friday prompt for Stream of Consciousness Saturday is “instructions.” Write instructions for anything you know how to do. As detailed or as rambling as you’d like. Enjoy!

I find myself wishing there were instructions for how to navigate the hydrodynamics of chronic illness. Alas, with no directions, illustrations, or instructions to say “insert tab A into slot B” we must negotiate the sometimes treacherous twists and turns based on our own research, the winnowing of advice from others, and often our own gut instinct. Continue reading “Spoonie Instructions – Stream of Consciousness Saturday”

Spoonie Sunday – The Most Important 15 Minutes of the Day

pouring tea - pixabay
photo credit Pixabay

“I watch his hands
as he pours the tea
big hands, strong hands
hands that belie
the gentleness of their touch” ~JP Pearlman 2015

Have you ever considered the human touch? We all enjoy the hug of a loved one, holding a child or parent’s hand. It’s those tiny moments of physical intimacy, of touching, that remind us we are not alone in this big bad world that we are connected on a physical level. Continue reading “Spoonie Sunday – The Most Important 15 Minutes of the Day”

Friday Follies – ramblings from a java junkie

queenstown 6

“Coffee, the sparkly, badass, magical unicorn of morning.” ~Me this morning

Coffee is actually a very important part of my self care program. I realize not everyone can handle caffeine and I’m not judging (I’m looking at you morning tea drinkers) but when I’m battling fatigue it’s my go to drug of choice. Continue reading “Friday Follies – ramblings from a java junkie”

Obstacles in the Path – Spoonie Moving Day

4.22.19 WWC

“Obstacles do not block the path, they are the path.” ~Zen Proverb

For the Which Way Challenge – brought to us by sonofabeach96

It has been a crazy few days here at Chez Lighthouse filled with chaos and changes. We moved this weekend. Now you wouldn’t think it would be that big of a deal. We moved from one RV to another, they were parked next to each other during the transition. I mean really, it’s a 200 sq. ft. (yes you read that right) home, how much stuff can two people living there possibly have? Well, let me tell you A LOT!! We’re full time RVers and for the past twelve years, our only home has been a 29 foot class C motorhome. The SS Minnie Winnie has been our home, our sanctuary, our transportation for a long time. It’s been a grand adventure, but it’s time for a change. Continue reading “Obstacles in the Path – Spoonie Moving Day”

Spoonie Sunday – March Reading

March was a kind of off month for reading for me. It has involved lots of travel. Not fun travel but medical travel and the seasonal RV move. I’ve driven over 5,000 miles and spent over 20 days traveling in the past 5 weeks. This included a hold over in Cheyenne, WY during the “epic blizzard” for three days while roads were closed. I’ve been to several doctor appointments and had two biopsies. I’m fine, thanks. Well, not fine but it’s not cancer or anything deadly. Just more shaking of heads and “well, let’s try this …” spoonies, you know the drill. Everything considered, I’m quite happy with my March reading accomplishments.

Hungry Girl Diet by Lisa Lillien
Hungry Girl has been around for quite awhile and this book is her well researched and documented diet plan. It’s a re-read for me. I read it a couple of years ago, followed the plan and lost a few pounds. Then I got sick, and pffffttt. So I’m re-reading and adapting the program to suit my current needs. The book is filled with lots of my kind of recipes. Basically just simple mixtures. Everything is easy to make and readily adaptable to one or two people.

Lady of Devices by Shelly Adina
A nifty little YA book. If you’re a steampunk fan or just thinking about getting into the genre, this is a must read. Plenty of historical research, a nicely believable plot, a heroine to really cheer for, class riots, scandal, young waifs and a wee bit of modest romance thrown into the mix make for a delightful romp through the world of Steampunk. The first of the series, it’s available in kindle format on Amazon for free.

Alice’s Adventures in Wonderland by Lewis Carroll
Yes, the classic. Yes it’s a re-read but let’s face it High School was a long time ago and a galaxy far away. I’ve seen a dozen different versions on the screen but in all honestly I only remembered about two sentences of the book so it was pretty much all new to me. I could tell you my adventures–beginning from this morning,’ said Alice a little timidly: ‘but it’s no use going back to yesterday, because I was a different person then.” It just doesn’t get much better than that.

Mistress of all Evil by Serena Valentino
I came into the “Villains” series with this one, book four and I can assure you I’m going back to the beginning and start from there. Nice plot, great character development, good twist. I enjoy complex villains and this delivers nicely. We get a look at Maleficent as a child, growing up, and how she came to be what she was. Definitely worth the read.

Switching Hour by Robyn Peterman
I almost put this one aside and I’m glad I didn’t. PG warning – there is a LOT of cussing in this book, rather more than I’m comfortable with. But it’s part of the character’s personality as we later learn. Basically a mix of paranormal romance (aka witchy smut) and mystery, it’s funny as heck. I classify this one as a “great trashy beach read.” It’s a quick read through, plenty of action, fairly good plot, hot characters.

I had to make serious modifications to my reading list this month for scheduling issues and that’s just fine. I still think a good book is a Spoonie’s best friend. Take your mind off your pain, your troubles for a while, dive in, and get lost into a fantasy. It may not be a cure but it’s sure a welcome respite from day-to-day spoonie care.

Til next time ~May the spoons be ever in your favor ~JPP

Spoonie Sunday – Life Tools – Escapist Coloring

3.23.19 spoon sun 1 (2)

I’m spending some time examining the concept of a life tool box, as outlined by Chris of Cee-chris.com 

This week has been a bit “off” for me. I had minor surgery and, while certainly not serious, required general anesthesia which is always hard on my system. I’m recovering just fine thanks, so this week has been a lot about ‘taking it easy’. Continue reading “Spoonie Sunday – Life Tools – Escapist Coloring”

Work and the Spoonie – Stream of Consciousness

bookkeeping-pixabay

For Stream of Consciousness Saturday sponsored by lindaghill.com

Your Friday prompt for Stream of Consciousness Saturday is “the last piece of mail you received.” Talk about the subject of the last piece of physical mail you received, i.e. a gas bill–talk about gas, not the bill itself. Have fun!

The last piece of mail I got was a 1099 for work I did. My subject is working as a spoonie.

Work and the Spoonie

One of the hardest parts of chronic illness, for me, has been the loss of meaningful work. For many years, I did not work to live, I lived to work. Then came the disease and the lung problems, the heart problems, the skin problems, and the back breaking, soul-crushing fatigue. I semi-retired at the age of 49. Continue reading “Work and the Spoonie – Stream of Consciousness”

Spoonie Sunday – Rage at the Dying of the Light

broken cup

A couple of weeks ago, Chris asked another of those “life tool box” questions. Which, of course, got me to thinking. Do go over and have a read here.

Who is that person who has taught me to see things in exquisite detail, to dream, to plan, and more than anything else, to be OK with who I am right now? For this ever so fortunate spoonie, that is my partner, my best friend, my fellow spoonie, Superhubs. He challenges me, reminds that we can not “let the bastard win” (the bastard being the disease). And sometimes, he let’s me rage, let’s me cry and reminds me that those feelings are OK too. Continue reading “Spoonie Sunday – Rage at the Dying of the Light”

Spoonie Sunday – The Art of Struggle

butterfly

I found a butterfly a couple of days ago. The first of the season. She sat on the driveway behind my car. I was worried that she might have been injured and I wanted to help her, to pick her gently up and put her on a bush where she might find better protection and food. But I didn’t. I left her alone and in a few minutes, she flew away.

Which reminded me of a story. Continue reading “Spoonie Sunday – The Art of Struggle”

Spoonie Saturday My Life Tool Box

tool-box-2124616__340 pixabay

Chris posted a few days ago something that really got me thinking. OK, OK, a LOT of what Chris posts gets me thinking but this one in particular got me thinking about spoonies and coping and life tools and well, the Life Tool Box. It is such a cool concept, click on over to Chris’ site and give the original a read, you won’t regret it.

To me, a Life Tool Box, is comprised of all those “tools” that we use when life starts to go wonky, and in all honesty, as a Spoonie, life goes wonky pretty darned often. I have lots and lots of life tools. Continue reading “Spoonie Saturday My Life Tool Box”