Spoonie Sunday – Cowgirl Up

My Okayness

I’ve talked the last few weeks about the benefits and uses for aromatherapy and essential oils for Spoonies. Today I’m going to talk about other aspects of managing chronic disease and fatigue.

I’ve been in a nasty flare for over a month now. The fatigue can best be described as “soul crushing.” It is not an exaggeration when I say that it takes me half an hour to get out of bed. It’s also accompanied by pain. Every muscle, every joint, every minute of every day. I read an interesting little blurb in Psychology Today about chronic illness fatigue and how it changes you, you can read the full article here.

It’s not fair, nobody should have to live like this. Yes, I’m grateful for all my blessings, I’m thrilled to have my love at home and healthy (enough). But I’m also angry. Chronic illness fatigue can make anybody angry at the whole world, and envious of “other” people. That’s OK, it’s not fair, at all, and it’s OK to feel that.

That said, this is the hand I’ve been dealt and the question becomes, “How am I gonna play it?”

Lately I’ve dipped into depression, despondency, and just plain old whineyness. I can barely stand to be around myself. So I have decided to play my hand differently. There comes a time when you just have to “Cowgirl Up” stop complaining and just do it. Joints and muscles ache, take some ibuprophen and go on. Feeling lethargic? Drink another cup of coffee and get on with life (I have a startling tolerance for caffeine). Bored (we’re usually traveling this time of year), pick a hobby and get lost for awhile. Go wander around, kill monsters, and find treasure (computer games). Grocery trip left me so exhausted I can’t think of the word for it (oogie is all that comes to mind and I’m pretty sure it’s a real word), for Pete’s sake stop trying to impress the world with how well you manage and GO LAY DOWN for 20 minutes.

The point I’m trying to make with this mini rant is that life ain’t fair, chronic illness is seldom a “happily ever after” story, but there are lots of things I can do to improve my circumstances. Ways to fight back and live the best life I can. “Every year 2 million people die of dehydration. So it doesn’t matter if the glass is half full or half empty, there’s water in the cup. Drink it and stop complaining.” ~Rudy Francisco

True Stories – Rudy Francisco

What doesn’t kill you – Kelly Clarkson

Till next time ~Cowgirl Up and hang onto your spoons ~JPP

One Liner Wednesday – Don’t poke the dragon

2019-20-1linerweds-badge

Congratulations to Linda our one-liner Wednesday host on her nanowrimo progress. You go girl!

speak politely

There are times when a Spoonie’s day is measured by whether or not you have enough strength to take a shower. Today is such a day here at Chez Spoons, but like Linda “I’m gonna make it.” It snowed yesterday and a cyclone bomb is coming our way Friday so we went to town today while the sun was still out and the roads at least partly thawed for the remaining supplies needed for the week ahead. It was crazy, insane, waaay too peopley, and perhaps a little more than this Spoonie should have taken on. But ….

It’s a delicate balancing act between knowing when to tell your disease “you’re not the boss of me” and when to listen to it’s need to rest.

Today I will speak politely to the enraged dragon of my immune system. I will rest, and drink hot beverages, and be thankful for the peace of Thanksgiving eve.

Til next time ~Peace to you ~JPP

31 days of October challenge Some Kitchen Witchery

31 days October

For 31 days of October challengeTodays thoughts were inspired by Beckiesmentalmess do pop over and give her Witchy Poem a read.

Now first off, I love all types of witchery but by far my favorite is Kitchen Witchery. Secondly, it’s flipping cold and windy in mid-October and soups and teas are just my thing right now. Continue reading “31 days of October challenge Some Kitchen Witchery”