Hazy Spoonless Days and Cardiac Sarcoidosis

sarcoidosis

“I talk a good game
for someone who topples over
putting on her underpants.” ~JPP

It’s been a tough summer here at Chez Spoons. The weather is wretched, smoke creates a smoggy haze, I wheeze, and debilitating fatigue is the order of the day. Summer flares are no fun and this particular one involves a flare up of cardiac symptoms. Hard to diagnose, near impossible to treat. So I do what Spoonies do best, I survive. I ride the wave of fatigue, don’t fight, just keep afloat and let it pass. My creative muse has deserted me. By mid afternoon I find myself spoonless and unable to do more than breathe and maybe blink. I force my way through the steps I have to take to stay “functional” like yoga, walking, meditating and proper diet. Then I collapse into bed and get up and do it all over again. Mind numbing routine guides me as I wait for the wave to carry me back to shore.

Red Sails in the Sunset – The Platters

Til next time ~Peace ~JPP

Sunday Stills – Leisurely Awakening

5.6.20 awakening
Dawn near Kapaa

Awakening

Slowly stretch and yawn
rising up to greet the dawn
fire breaks through the sky
awaken the magic before my eyes
leisure days of sun and sand
far away from the things of man

For Sunday Stills — awakening of leisure

Leisure is one thing I’m feeling the lack of lately. Most of my leisure activities, you see, involve traveling. As in, long distance traveling. One of my absolute favorite leisure activities is staying on a little stretch of beach near Kapaa on the Island of Kauai in Hawaii. There each morning we rise early to watch the awakening of the day. We stand and soak in the glorious ambience of sun and sea.

Aloha Oe — Teresa Bright

Til next time ~Stay safe, stay sane, stay sanitized ~JPP

What Day Is It Anyway? — Coping with Covid

3.25.20 bill the cat
Image found on Pinterest

For Linda’s What day is it anyway, a little something I got from my sister this morning. 😉

Happy Easter Monday! See, I do know what day it is! I wanted to share with you something I saw recently. A Dr. on TV was saying that during this time of pandemic, lockdowns, slowdowns, and quarantines we should focus on ourselves and our inner peace.

He also said it was a good time to look around us and finish up some of those things we started but have left unfinished. So, I looked through my house to find some things I started and hadn’t finished.

I finished off a botter of Merlot, a bottle of Chardonnay, a bodle of Baileys, a butle of wum, tha wemander of a Valuminium scriptun, and a box of chocletz.

Yu haf no idr how feckin fablus I feel rite now! So I’m sneding this to all who ned inner piss, don’t foget to hash yer wands, has a stafe day avrybobby!

Give Peas a Chance

Til next time ~All I am saying, is ‘buy peas in cans’ ~JPP

AtoZ Challenge days 5&6 oh and What Day It It Anyway? — Coping with Covid day ???

3.25.20 bill the cat
Image found on Pinterest

A to Z — Eating and Fatigue/What Day Is It Anyway?/Coping with Covid day???

OK so I officially don’t know what day it is anymore. I seem to have lost a couple of days. Well not really true but kind of, it’s Monday, I think. I suffered a fatigue collapse yesterday (yes that’s a real thing). It happens to people with various types of chronic fatigue when for one reason or another your entire system just collapses, you can’t think, you can barely move, sometimes can’t eat or even speak.

One of the blessings of this quarantine is that I have reconnected with my mad kitchen skills. When I related to friends and family the fact that we’ve not stepped foot inside a traditional grocery store in two months, the main question I got was “what do you eat?” Oats for breakfast with protein powder and frozen berries, lunch; canned salmon, low carb wrap, canned olives and vegetable soup from freeze dried vegetable mix; dinner; tempeh with red cream sauce (cream sauce with freeze dried tomato powder) and frozen vegetables, snacks have been banana chips and dried apricots (both unsweetened) with various nut butters. Yep, you can eat healthy from the pantry.  Of course, you can also binge eat all out of proportion …. but that’s a topic for another day.

It has taken me over an hour to write this so …. I’m going to go drink a cup of tea and maybe take a nap. 😉

I’m Tired — Madeline Kahn

All The Tired Horses – Bob Dylan

Til next time ~Keep your head down and your pantry full ~JPP

What Day Is It Anyway? Coping with Covid and AtoZ blogging challenge “C”

snowy branches

For A to Z Blogging Challenge — “C” Coping

Coping with Quarantine

Looking out my window hoping
there’s more to life than merely coping
my nerves in need of extended doping
fingers raw from excessive soaping
with new protocols I’m still groping

but …

snow still glistens, bunnies hop
and birds still sing, never stop
it’s really not so bad a thing
simply coping with quarantine

What Day Is It Anyway? – Coping with Covid day 15

What day is it anyway? Hmmmm I’m thinking Friday? I only know this because it’s “Castle” night. Yep, we watch dvds of the series “Castle” on Friday nights and, hey I never miss Nathan Fillion. It’s quiet here, very quiet, no people out walking, no carts driving by, no snow plows. It’s almost eerie and kind of weird but we’re just taking it all in.

Castle Theme

Til next time ~Peace ~JPP

A to Z Blogging Challenge and What Day Is It Anyway April 2

snowy branches

A to Z Blogging Challenge – B is for Blessing
What Day Is It Anyway April 2— Coping with Covid day 14

Blessings

My life is full of blessings
even though the snow is messing
with my plans, leaving me guessing
I find my self honestly confessing
I miss the sun’s warmth caressing
though Summer heat can be oppressing
and humidity is too depressing
So I’ll cloak myself in winter’s dressing
warm and snug to contemplate my blessings

Awoke to several inches of snow this morning when a spring squall moved in. A few more inches since then. It’s been a quiet day, roads and sidewalks are slick with melting then refreezing run off. My exercise today has consisted of an indoor walking video, and shoveling the front walk twice plus a short walk to the garbage cans. Good enough.

I am reminded today that one of my goals has been to acknowledge the blessings this pandemic panic has brought my way. I gaze out my window at the snow covered trees, bushes and roads and contemplate the blessing of a warm snuggly home. I was able to pick up groceries yesterday, have ordered more on-line and have a stocked pantry to see me through until those orders arrive. Blessings, oh so many, many blessings fill my world every day, it is humbling to contemplate. Blessings to you my friends.

 

A day in the life — The Beatles

Til next time ~Peace ~JPP

A to Z Challenge, What Day Is It Anyway? Coping with Covid day 13

anti idiot

My contributions for the A to Z Challenge – Anti-Social and What Day Is It Anyway– Coping with Covid – day 13

“I am not anti-social, I’m anti-idiot” ~ Sherlock Holmes

In a sudden irrational act of antimicrobial, antihistimine inspired social distancing, I caught myself waving to one of my soon to be co-workers from my window this morning. He didn’t wave back, then I remembered, I have tinted windows, you know those shiny mirror things that block the view so I can see out but no one can see in. Drat! That’s what you get from inhaling too much sanitizer! Wonder if that could be considered huffing?

We ventured out into the wilds of semi-suburban Rapid City to our local Health Food Coop today. It wasn’t half bad. Special “immune compromised” hours and a very small store with fairly high prices led to an almost serene atmosphere. No toilet paper, no wipes, no rolled oats, but filled most of the rest of my list. Got in, got out, got home, just in time for a Spring Squall complete with snow. Ahhhh Black Hills in the Spring.  How y’all holding up?

Til next time ~ Keep your head down and your pantry full ~JP

From a Distance — Bette Midler

What Day Is It Anyway – Coping with Covid day 10-11

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What Day Is It Anyway? Coping with Covid day 10-11

Well it was bound to happen and it did. I finally had a system melt down. I’ve kept the stress and anxiety bottled up, dealt with the pollen and weather changes, the drippy sinuses and the coughing. Apparently my body and mind have had enough and yesterday I just threw in the proverbial towel. I spent the major portion of 24 hours asleep. I sat in the recliner and snoozed most of the day, ate only sparingly, and was in bed by 6:00 pm. I feel better today but still somewhat drained. I am reluctant to take the immune suppression drugs I normally take for this since they basically squash my immune system and I’m not sure that’s such a good thing right now.

We got out for a good walk early this morning before the clouds, wind and … people. I swear if I get out of this crisis without a full-blown case of agoraphobia I’ll be doing really well. It’s already nuts as I’m washing and sanitizing my hands so much they’ve dried out to the point of cracking and bleeding. OK, OK, it’s also partly caused by Sjogren’s but c’mon I can blame it on Covid Prevention Paranoia, symptoms include excessive washing and sanitizing, fear of anything not clearly (and personally) sterilized, man I need an autoclave! Oh well, as they say:

“This too shall pass
it may pass like a kidney stone
but it will pass.”

The Rose — Bette Midler

Til next time ~Peace ~JPP

SoCS – What Day Is It Anyway?

socs-badge-2019-2020

From Linda: Your Friday prompt for Stream of Consciousness Saturday is “beside you.” Write about whatever is beside you when you read this prompt. Not when you sit down to write, but whatever is beside you right now. Take note of it if you think you might forget. Enjoy!

What Day Is It Anyway? Coping with Covid day 9

The quarantine continues, our governor has asked for more business closures. We’re holding up OK here although we’ve got “new” campers in the park who have been asked to self quarantine for 14 days, don’t know how compliant they’re being but, hey we’ll see.

Linda has asked us to write about what’s “beside you” when you read this prompt. For me, it is my ever present coffee/tea cup directly to my left hand; my window open to my right letting in some sunshine. That window becomes more and more important to me the longer I’m “inside.” We still get out a bit for walks very early in the morning before everybody invades our little spot of solitude but have been curtailing those a bit due to my continuing cough.

3.15.20 sunrise

Outside my window
the wind blows,
robins squabble
over tasty worms,
bunnies sample tender
green shoots of grass,
trees sway,
their branches dancing
in the Spring winds
dotting the ground
with pine cones
oblivious to the
worries of humans

The April Fools — Burt Bacharach, Dionne Warwick vocals

Til next time ~Peace ~JPP

What Day Is It Anyway – Coping with Covid – day 8

snowy branches 3.26.20

What Day Is It Anyway – Coping with Covid – day 8

From Linda: Because if you’re like me and stuck at home already, or if you’re going to be like me soon, the days of the week are going to be hell to keep track of. We have a wonderful community here on WordPress and all over the Internet as well, and I’m sure many people are feeling nervous and/or isolated. I want to make sure every one of us has somewhere to congregate and someone to talk to.

I want everyone to know that you can start discussions with each other in the comments, and if you’d like to write your own “What Day is it Anyway?” post, you can link to this one. Hashtag #WDIIA.

Let’s keep in touch!

Well it’s the 8th day of isolation for us. Weather is still wet and dreary although most of the snow has melted now. Went for very short walk yesterday and snapped a few pics of the last remaining remnants of snow. May use them for backgrounds for some digital art. I’m still coughing like a TB ward. I’m actually glad to be staying home as I don’t feel 100% and I’m quite certain to get taken out by a sniper if I go out with this cough. I swear I can hear friends backing away from the phone. I know it’s nothing serious, I get at least one spring cold every year at this time but I do tend to sound like a seal. In further quarantine news, we ordered some dried vegetables and found soup mix without all the potatoes, carrots, and corn that most have. Placed another Costco order since it takes them a week or two to get here. I currently have a case of almond milk waiting up at the office which I should be able to pick up tomorrow. For distraction today I’ve done lots of writing. I’m re-reading a book series by David Eddings that I haven’t read in many years and I’m loving it just as much this time around. Listening to some new music on Spotify, did a little cleaning but still feeling a bit weak for the heavy stuff.

Resilient — Rising Appalachia

Til next time ~Peace ~JPP