A couple of weeks ago, Chris asked another of those “life tool box” questions. Which, of course, got me to thinking. Do go over and have a read here.
Who is that person who has taught me to see things in exquisite detail, to dream, to plan, and more than anything else, to be OK with who I am right now? For this ever so fortunate spoonie, that is my partner, my best friend, my fellow spoonie, Superhubs. He challenges me, reminds that we can not “let the bastard win” (the bastard being the disease). And sometimes, he let’s me rage, let’s me cry and reminds me that those feelings are OK too.Continue reading “Spoonie Sunday – Rage at the Dying of the Light”→
I found a butterfly a couple of days ago. The first of the season. She sat on the driveway behind my car. I was worried that she might have been injured and I wanted to help her, to pick her gently up and put her on a bush where she might find better protection and food. But I didn’t. I left her alone and in a few minutes, she flew away.
Chris posted a few days ago something that really got me thinking. OK, OK, a LOT of what Chris posts gets me thinking but this one in particular got me thinking about spoonies and coping and life tools and well, the Life Tool Box. It is such a cool concept, click on over to Chris’ site and give the original a read, you won’t regret it.
“I like living. I have sometimes been wildly, despairingly, acutely miserable, racked with sorrow; but through it all I still know quite certainly that just to be alive is a grand thing.” ~ Agatha Christie
The world lost a warrior this week. A brave young man who fought the good fight his entire life. Blake was 14 years old. I have no words for his family to help ease the burden of this tragic loss. Blake bravely battled leukemia for most of his life, he was a warrior in every sense of the word. I don’t know why life works this way, I only know that sometimes bad things happen to good people.Continue reading “The Terrible Privilege of Life”→
I woke one day to screaming and realized it was my own broken dishes, shattered glass I shivered all alone. For the darkness had come again broken free from his cage wreaking havoc and despair with violence and rage Tears fell from my eyes and landed on the floor I shook my fist at heaven and then I cried NO MORE! I swept the bits and pieces and patched up every wall and then I went inside myself and built a holding cell Made up of logic and of reason it would hold the darkness well Continue reading “Darkness Lies Within”→
Today’s bit of found poetry is in the black-out form and derived from an information sign at an exhibit of Japanese Farm Houses in Osaka, Japan
Graves and tombs on the mountain stone statues standing over memorial to console dead souls the earth, the water, the fire the wind, the sky, the gem symbol of the universe
When I see old buildings, art works, poetry or people I’m always amazed at the gratitude I feel to be seeing these things that have stood the test of time. I remember that tomorrow is never guaranteed. Today is all we have. Seldom have I felt this more acutely than today. Today a young friend is waging his final battle. He has fought Leukemia for over 12 years and is slipping fast. He is 14 years old. So look around you today, forgive the people you need to forgive, love the people you need to love and remember that tomorrow is never guaranteed.
Age begins to humble you, in ways you can’t imagine There is no more time for drama and conflict Nothing more important than a loving touch and good cup of tea When all the magic of the universe can be found in a sunset ~JP Pearlman