Spoonie Sunday – Rage at the Dying of the Light

broken cup

A couple of weeks ago, Chris asked another of those “life tool box” questions. Which, of course, got me to thinking. Do go over and have a read here.

Who is that person who has taught me to see things in exquisite detail, to dream, to plan, and more than anything else, to be OK with who I am right now? For this ever so fortunate spoonie, that is my partner, my best friend, my fellow spoonie, Superhubs. He challenges me, reminds that we can not “let the bastard win” (the bastard being the disease). And sometimes, he let’s me rage, let’s me cry and reminds me that those feelings are OK too. Continue reading “Spoonie Sunday – Rage at the Dying of the Light”

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One Liner Wednesday – Dark Side

Darkside
Digital Art from my polyvore collection

“Like a diamond from black dust, it’s hard to know what can become if you give up.” ~Alexander Geringas / Michael Busbee “Dark Side” by Kelly Clarkson

Continue reading “One Liner Wednesday – Dark Side”

Spoonie Sunday – The Art of Struggle

butterfly

I found a butterfly a couple of days ago. The first of the season. She sat on the driveway behind my car. I was worried that she might have been injured and I wanted to help her, to pick her gently up and put her on a bush where she might find better protection and food. But I didn’t. I left her alone and in a few minutes, she flew away.

Which reminded me of a story. Continue reading “Spoonie Sunday – The Art of Struggle”

Spoonie Saturday My Life Tool Box

tool-box-2124616__340 pixabay

Chris posted a few days ago something that really got me thinking. OK, OK, a LOT of what Chris posts gets me thinking but this one in particular got me thinking about spoonies and coping and life tools and well, the Life Tool Box. It is such a cool concept, click on over to Chris’ site and give the original a read, you won’t regret it.

To me, a Life Tool Box, is comprised of all those “tools” that we use when life starts to go wonky, and in all honesty, as a Spoonie, life goes wonky pretty darned often. I have lots and lots of life tools. Continue reading “Spoonie Saturday My Life Tool Box”

The Terrible Privilege of Life

mourning-1665772__340
photo via pixabay

The world lost a warrior this week. A brave young man who fought the good fight his entire life. Blake was 14 years old. I have no words for his family to help ease the burden of this tragic loss. Blake bravely battled leukemia for most of his life, he was a warrior in every sense of the word. I don’t know why life works this way, I only know that sometimes bad things happen to good people. Continue reading “The Terrible Privilege of Life”

Darkness Lies Within

kira sun scribbles 2.17.19

Darkness Lies Within

I woke one day to screaming
and realized it was my own
broken dishes, shattered glass
I shivered all alone.
For the darkness had come again
broken free from his cage
wreaking havoc and despair
with violence and rage
Tears fell from my eyes
and landed on the floor
I shook my fist at heaven
and then I cried NO MORE!
I swept the bits and pieces
and patched up every wall
and then I went inside myself
and built a holding cell
Made up of logic and of reason
it would hold the darkness well
Continue reading “Darkness Lies Within”