Spoonie Sunday – JusJoJan 19 – Gratitude and gobbledygook

For Linda’s JusJoJan prompt for January 19th, 2020, “gobbledygook.” Use the word “gobbledygook” any way you’d like. Today’s prompt is brought to us by Jim.

Spoonie Gratitude

“Gratitude is a choice I can make every day.” My dear Mother sent me a kitchen towel with that slogan on it many years ago during a particular low point in my life. Back then I was an arrogant 30-something with a career, children to raise and stuff to do. I regarded that precious slogan as a bunch of gobbledygook, nonsense meant for the weak willed. Continue reading “Spoonie Sunday – JusJoJan 19 – Gratitude and gobbledygook”

Thoughtful Thursday – The Acorn

acorn
photo from Pixabay

Consider the acorn, humble harbinger of Fall. What is an acorn, really? Well, in a nutshell, it’s an oaktree. Hardeharharhar. In a nutshell … tehehehe. Anyway that’s what this post is about, the past three weeks of my life, in a nutshell.

As some of you know Superhubs and I are a Spoonie couple. We both have autoimmune diseases that require constant management. Superhubs has MS (with spinal cord lesions) and type 2 diabetes, I have a weird little buggaboo known as sarcoidosis. We’re the most symbiotic people I know, we’re better together than the sum of the two of us and yes he is the love and the light of my life.

A few weeks ago a routine MRI of the head showed the formation of an AVM (that’s arteriovenus malformation if you care) caused by a fistula. Not to get too medical on you but an AVF (arteriovenus fistula) is caused by an artery (or more) dumping directly into a vein without the benefit of the network of capillaries normally present. It creates a “bulge” in the vein. Bottom line, too much pressure on the vein and it blows out. Yeah, this is serious stuff the only thing to do is go in an resect the arteries to relieve the pressure on the vein. Yeah … brain surgery.

So here I am, 2 brain surgeries, 2 strokes, 9 day in Surgical Intensive Care Units, 9 days of in-patient rehab, several seizures, 911 calls and 3 MORE days in general Intensive Care Unit later. The strokes were minimal but have left him unable to move his right foot and ankle. Serious but overcomable. Somehow, his nicely controlled type 2 diabetes has become insulin dependent. In other words along with all the physical therapy (we’re still on twice a week plus home exercise) we have six blood tests and insulin injections per day, along with food logs and weight monitoring (he’s lost too much weight) a tightly controlled carb counting diet and many many many sleepless nights.

Things are looking up, we’ll get through this just like we have everything else, together. I just wanted to thank all of you for your kind thoughts and support.  This is from a plaque my Mother sent me when I was first diagnosed.

“When things go wrong, as they sometimes will
when the road you’re trudging seems up hill,
when life is crushing you down a bit
rest if you must, but don’t you quit

Success is failure turned inside out
the silver lining in the clouds of doubt
you never know how close you are
it may be near when it seems too far

so stick to the fight
when you’re hardest hit
it’s when things go wrong
that you mustn’t quit” ~Unknown

 

Til next time ~Peace ~JPP

A Phoenix in Kyoto – Haibun Monday

There is a Chinese Parasol tree in Kyoto, Japan. Grown from the seeds of the hibakujumoku, the trees that survived Hiroshima. It is a humbling reminder that the power of man to do evil cannot defeat the power of nature to heal and survive. For dVerse Poets Haibun Monday.

A Phoenix in Kyoto – Haibun Monday

Tall and green she shares her shade. Born of the hibakujumoku, survivor of horror and black rain. So much death surrounded her as buildings crashed and humans burned and life evaporatated. Yet, she survives. As the Phoenix rises from the ashes, and the moon pulls in on herself nature waxes full once more in the steady march of time. Her seeds came to this place where she stands in quiet testimony, reminding all that the stupidity of man is no match for the beauty of nature.

no atrocity
cancels blessings of nature
greening comes again

Til next time ~Peace ~JPP

Spoonie Saturday My Life Tool Box

tool-box-2124616__340 pixabay

Chris posted a few days ago something that really got me thinking. OK, OK, a LOT of what Chris posts gets me thinking but this one in particular got me thinking about spoonies and coping and life tools and well, the Life Tool Box. It is such a cool concept, click on over to Chris’ site and give the original a read, you won’t regret it.

To me, a Life Tool Box, is comprised of all those “tools” that we use when life starts to go wonky, and in all honesty, as a Spoonie, life goes wonky pretty darned often. I have lots and lots of life tools. Continue reading “Spoonie Saturday My Life Tool Box”

Spoonie Saturday

Coffee PIN 2

As a spoonie, there are days, you know those days. Those days when all you can do is drag yourself out of bed, every joint and muscle complaining all along the way. Slug down a couple of Aleve and soldier on. Limping your way into the kitchen. Where all of a sudden your sweet partner (Superhubs here) hands you a cup of beautifully brewed espresso, americano to be specific. The aroma wafts up to your nose and then connects to your brain and you feel … better. Not great, but maybe not quite dead yet. Then he smiles and says “coffee makes everything better.” Yeah, it does. Powers above, grant me coffee to change the things I can and music for the things I can’t. Grab my phone, queue up the “pump me up” play list, do some yoga, sipping the elixir of the gods, aka coffee, between poses. Better, much, much better.

I know that sometimes it’s not enough, the disease gets the better of us in spite of our best efforts. But, for me at least, a lot of the time, a couple Aleve, a good cup of coffee (or 3), some great music, a little movement and a loving gesture can make all the difference. Have a happy Saturday.

Til next time ~Peace ~JPP

Christmas is Coming

steampunk Xmas

I have a confession to make. I’m one of those “not Christmas” people. I say happy holidays because I realize not everyone celebrates Christmas. To be completely honest, in many ways I loathe the entire season. The crowds, the traffic, the crabby frenetic atmosphere that pervades every trip outside of my home. The aura of demand and entitlement is pervasive and more than a little overwhelming. When approaching anything remotely resembling a mall I tend to whisper a small prayer under my breath, or perhaps it’s really a curse, I’m not sure. “By the pricking of my thumbs, something wicked this way comes.” Yeah, I know freaky right? I’m really just not a fan of what Christmas has become, the over commercialized, neon lighted, fake sparkle, animated angels, huge inflatable snowmen, stress riddled, greed laden “holiday” that we call Christmas.

Continue reading “Christmas is Coming”