Spoonie Retirement — Life Love and Temperature Intolerance

Welcome fellow spoonies and other sentient beings to another edition of

Spoonie Retirement. The week has gone by, as weeks tend to do. After the hub-bub of the last few weeks it’s been nice to relax a bit.

Above buttermilk skies in the morning, here at the Ranch

If we were having coffee this week, I’d wish you a happy Beltane, then I’d brag that all of our de-winterizing is done on the RV and we’re ready for Spring. Hang on just a minute … this is summer weather! We seem to have by-passed spring this year. Two weeks ago we had snow, this week we have highs in the 80’s. Summer craziness has already begun here at the RV park. Sections of the park that have been closed all winter are open once again and are fully occupied, as people come out to celebrate the good weather. Humpffff, good weather in deed, too hot for my liking.

Trees bursting with buds

As Spoonies, Superhubs and I both suffer from temperature intolerance, and it changes. In the winter I find 59-60f perfect indoor temps, in the summer I’m freezing at 68, sweating at 78. Yeah, I have a teeny tiny thermal comfort zone. So while two weeks ago I was putting on extra sweaters to keep warm, I am now stripping off layers and wandering about in shorts. Symptom management requires constant adjustment. Regrettably, I also loathe air conditioning which complicates things a bit more. Don’t misunderstand me, I still USE the A/C, I just don’t LIKE it.

Lilacs are already in leaf, blooms can’t be far behind.

Like a lot of Spoonies, a sunny day can wreak all kinds of havoc with my immune system, triggering flares from my feet to my eyes. This is the time when simple, easy meal plans involving little to no cooking become essential to our well-being. Big batch oat porridge, prebaked frittata cups and fruit with or without yogurt are breakfast basics. Lunches are salads and wraps. Dinners are mostly foil wraps, outdoor grill or “slow cooker” meals.

With heat intolerance, the main problem we face is afternoon fatigue, so we plan around it. Chores, exercise, and activities take place in the mornings. Once 3:00 pm hits, that heavy, can’t breathe, can’t move, OMG-I’d-die-but-it-would-take-too-much-energy fatigue just crushes the life out of you. A cool shower in the afternoon will revive enough spoons for a light supper, movie, and bed. On the menu tonight, greek chicken casserole. This low carb version is “baked” in the slow cooker with side salads or microwaved vegetables from our local organic coop. Hope you’re having a wonderful week, do come join us at the weekend coffee share hosted by Natalie for sips, quips, shots and talks.

Stuff I’m watching and doing today

til next time ~Have a Blessed Beltane ~JP

6 thoughts on “Spoonie Retirement — Life Love and Temperature Intolerance

  1. Oh, changes in temperature can be really tough indeed, but I had no idea what it’s like to suffer with such heat and cold intolerance. I struggle to feel when I’m hot or cold really. Anyway, I’m glad you had a pretty relaxing week.

    Liked by 1 person

    1. Thank you, that’s a great question. I like to say that it’s about navigating the river of retirement without a paddle. lol Seriously, Spoonies is an affectionate name for folks with various fatigue related chronic illnesses. We measure our available energy in “spoons” and every day is filled with choices about how to use those spoons (energy). Mine mostly boil down to cook dinner or take a shower because I haven’t the energy to do both by evening. Spoonie Retirement is about how two folks (me and hubs) with chronic diseases cope with the challenges of retirement. 😉

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  2. Love that sky photo. My lilacs are blooming and I love the smell…my hubby doesn’t like the smell so I enjoy them outside. I had to look up what Spoonie meant. I’m so sorry you have to deal with all of that. No fun.

    Liked by 1 person

    1. Thank so much Kirstin. I love lilacs too, the smell and the visual appeal. Being a Spoonie is definitely a double edged sword. Yes, we lose a lot but we also gain so very much. Like a deep sense of gratitude for every single ordinary day. We’ve developed a certain macabre sense of humor about the whole thing and you’d be amazed at how much we laugh, at the disease, at the handicaps, at life.

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